LEE, Mass (WGGB)- Two short years ago, Melissa Mosca of Lee, MA lost her 20 year old son Jeffrey.
Only weeks after his passing she found out her other son, Hunter, had the same life-threatening disorder. The condition, Loyes- Dietz syndrome, is a genetic connective tissue disorder.
“When he was diagnosed all I could think is that I’m going to have to go through this again,” says Mosca.
Hunter lives with this condition everyday. “It makes me sore everyday when I wake up the veins in my head are twisted like pretzels,” says Hunter.
Yet the 13-year old has similar interests of most other boys his age. He espcially loves basketball. ”I like the Celtics since I knew what basketball was,” says Hunter.
Even though his condition limits him from playing contact sports, The Make-A -Wish Foundation of MA and RI granted his wish and brought the basketball court to his bedroom.
A Make-A-Wish team painted the walls green and filled the room with Celtics memoribilia. On one wall is a life-size version of his favortie athlete and a special something signed by Rojan Rondo himself… a signed jersey.
When a child is diagnosed with a life threatening illness there are many things that they have to do- like doctors appointments and taking certain medications. But a wish is something a child can call their own.
“Its a place he finds peace in, comfort and joy,” says Make-A-Wish representative Peg Wheble.